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Identifying children living with Progeria
At VIVA! we’ve been busily researching Progeria, also known as the Hutchinson-Gilford Progeria Syndrome, and assisting our GLOBALHealthPR partners in a worldwide search for children diagnosed with the condition. Progeria is a rare and fatal genetic condition that causes rapid ageing in young children. Progeria symptoms include growth failure, loss of body fat and hair,…
Read MoreJeans for Genes Day at VIVA! HQ
What is Jeans for Genes? Jeans for Genes is a major national fundraiser for the Children’s Medical Research Institute. It is the signature event of Jeans for Genes and is held on the first Friday in August. This year Jeans for Genes Day is Friday August 5. To find out more or donate go…
Read MoreFamilies with Fragile X on 6.30 with George Negus
Did you miss Tuesday’s national media coverage of Fragile X? If so, just make sure to tune into 6.30 with George Negus tonight on Channel 10 to watch Emily Rice’s report on the condition. Emily interviewed two families living with Fragile X – the world’s leading inherited cause of intellectual disabilities such as autism. Here’s…
Read MoreDoctors uniting to unravel intellectual disability and autism gene for Fragile X Awareness Month
Today, Australian doctors are announcing their world-first endeavour to unravel the leading genetic cause of intellectual disability and autism, as part of Fragile X Awareness Month (July). Fragile X Syndrome affects up to 100,000 Australians – many of whom are unaware they have the condition – and causes a range of physical and intellectual disabilities…
Read MoreFast facts on Fragile X
Have you ever heard of Fragile X, the most common inherited cause of autism? Don’t worry, most people haven’t. Yet Fragile X Syndrome affects up to 100,000 Australians and is the world’s leading cause of developmental and mental disability worldwide. July is Fragile X Awareness Month, and VIVA! Communications has teamed with the Fragile X…
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